bryce michelle 1092fMy name is Michelle Bryce, I'm from Georgia in the USA. I was diagnosed with GP in 2014, I also have diabetes, fibromyalgia, Rheumatoid arthritis. I am married to the love of my life and have three children 30, 28 and 21 and two grandchildren ages 7 and 5.

Follow me on Twitter, Instagram and Facebook

 

boman ashley

I was diagnosed with Gastroparesis in 2007 at the age of 17. My story, however, started long before I was diagnosed. One of my earliest memories is of being woken up by my parents in the middle of the night laying in puddle vomit. This happened very frequently as I grew up.

Throughout elementary and middle school I was in the nurse’s office daily with the worst stomach aches you can imagine. I was told repeatedly by the school nurse and my parents that it was just nerves. No one would listen to me, so I suffered. Most of the time I tried to hide the pain and sickness because I was tired of being told it was all in my head. As I grew older and started high school thing continued worsen with my health. I was in and out of the ER and urgent care on a weekly basis, vomiting daily and losing weight rapidly.

It wasn’t until I was 17 and could pay for my own healthcare that I was finally referred to a Gastroenterologist. After many tests and procedures, the doctor told me that I have Gastroparesis. At that time, I had no idea that those words would forever change my life. The doctor wrote me a prescription for a medication that I was told to take 30 mins before every meal. It was supposed to help my stomach motility; it didn’t. It did however cause me to have constant panic attacks and muscles spasms. When I returned to the gastroenterologist to follow up, he was frustrated and told me that if the medication I had tried didn’t help, there was nothing more he could do for me. I still didn’t realize what Gastroparesis was or how it would affect my future. I left not knowing that

kessler dawnPic is from a few months ago on a string of okay days! LOL Fighting GP over 10 yrs. Been seen in Philly, Mayo Clinic in MN & Hershey. Currently symptom management by a local GI, who I love right now! Wish he could help with more than just GI. My management includes: IV home meds, currently via Broviac central line. Past 2 medi-ports gone due to infections. IV meds include: Zofran Q 6hr alternating with Benadryl & Phenergan Q 6hr and IVF prn.

murdock melissa2 05e62

I’m Melissa, am 38, and have been diagnosed with GP since March 2017. I believe it all started after I was put on an antibiotic for an ear infection. Within a few days I started having issues. I’ve had 4 failed PICC lines/2 TPN rounds and a failed J Tube. I am waiting for the insurance to approve a bypass surgery to remove about 75% of my stomach. I’m very blessed and married my husband at the end of June (the day after getting a PICC placed). We have a big, busy family, we each have 3 kids (yes that’s 6 total) and are a proud US Navy family. I have horror story after horror story of ER visits/hospital stays but I will continue to fight. For myself, husband and kids 💚

I’m Melissa, am 38, and have been diagnosed with GP since March 2017. I believe it all started after I was put on an antibiotic for an ear infection. Within a few days I started having issues. I’ve had 4 failed PICC lines/2 TPN rounds and a failed J Tube. I am waiting for the insurance to approve a bypass surgery to remove about 75% of my stomach. I’m very blessed and married my husband at the end of June (the day after getting a PICC placed). We have a big, busy family, we each have 3 kids (yes that’s 6 total) and are a proud US Navy family. I have horror story after horror story of ER visits/hospital stays but I will continue to fight. For myself, husband and kids 

elliot dana

hearn sandraI am complicated. I have Lupus, Chiari 1 Malformation, severe Gastroparesis, POTs, Hoshimotos, and a really bad spine with five tarlov cysts at S1-2. Throughout the past couple of years having been brushed off with Chiari in 2010 by a neurologist and finally figuring out in 2015 what was wrong the damage was done. I had brain surgery in April 2016. Vagus nerve damage and a brain bleed as well. I have the best neurosurgeon in the world. one of the only doctors that truly does have compassion. I have been in and out of hospitals like the majority of you. The lack of compassion is mind blowing.

I am almost 54 years old. Two days ago I went for a lumbar puncture. I got a call from a nurse and she was as sweet as she could be. She walked me through what would take place. The problem wasn’t the nurses. The problem was the doctor. He didn’t care I had a feeding tube. I had to miraculously find a way to lay on my stomach.  

Just last week I went through two tube changes. One where they cut the stoma to fit a larger tube because they refused to order my tube that I had. So I had a tender belly already. I had to prop my 83 pound self up using my weak arms and legs during the procedure. Then the impatient doctor didn’t wait for the numbing meds to take affect. He proceeded even after I told him I was in pain multiple times. Seriously?  I shook in pain. I cried in silence. More trauma totally unnecessary because one man chose not to have compassion.

This is just one story. I have too many stories. I could fill a book. Our hospitals lack compassion. Sadly it is becoming the norm.