- Written by Flora Santagata
- Hits: 179
Hello, My name is Flora, I'm 55 years old & was diagnosed almost three years ago with GP. I was an LPN & it was never taught in nursing school. When I was diagnosed, I thought they were wrong & was in denial for over a year. But finally doing some research & joining the FB page for Gastroparesis, I had to face it that this is my life now.
I dropped down to 100 lbs, & threw up constantly with bloating, pain, & constipation. No matter what I ate, drank or crushed up, it wouldn't go away. I believe that I had gotten GP from several abdominal surgeries. After having a total hysterectomy at the age of 21. I thought that was it, no more problems. But soon afterwards I started getting sick like morning sickness or the flu.
Then in 1994 I had a bi lateral mastectomy with reconstruction. Then I had my gallbladder taken out because it elongated because there was no female organs to keep it in place. All the while, I just thought I caught the flu more than the average person. After a while my family said something is wrong, you can't get the flu every 3 weeks.
- Written by Moshe King
- Hits: 184
Hello All, My name is Moshe King, I am 38 yrs old and I live in Hendon - north of London with my wife and 4 kids. I finally got diagnosed with GP after meeting with Gastroparesis 5yrs ago. This is the first time I have shared my story in public as requested, so here it goes - I am no writer but I hope through the pain you might find a smile along the journey too, I didn’t realise how much I wrote until I pasted it across just now - sorry in advance.
Like many sufferers, my history dates back many years is rather complex rhetoric. In a nut shell and as far as we can ascertain my story really starts when I was five and a stomach infection / bacteria left me with Idiopathic Gastroparesis, except it was never diagnosed nor at that the time was it even thought of from main stream medicine.
- Written by Eshanya Walls
- Hits: 225
I was diagnosed 1 year and 5 months ago but believe my GP started developing 3 months prior to diagnosis.
I have suffered from Cyclic Vomiting Syndrome for over 25 years.
I thought for sure with the GP diagnosis I would finally be heard and get some treatment and attention to my gut health.
Although, CVS is rare and I never received adequate treatment I had well phases. With GP I found I was more isolated and basically left for dead.
I have many diagnosis but I truly believe once my GI system went out everything was set off and flared.
I am here to be heard and fight with the best.
- Written by Kristina Faretra
- Hits: 270
First off, seems like most ERs we have been to do not even know what GP is.
2nd off, seems like if you are vomiting worse than usual, lethargic, or can’t even hold down water and you know it’s not your GP acting up, the ER will automatically brush every symptom as ITS JUST GP and not do anything.
Seems like every ER is afraid to touch a child that has GP. Seems like many do not even know what safe meds are and aren’t for GP. (My son was given meds for a virus the other day meanwhile his GI said it was one of the worst meds they can give GP person)
I was told by a doctor that i must have been doing drugs when i was pregnant because that is the only reason my son must have GP and rely on a feeding tube to survive.
- Written by Sarah Bowker
- Hits: 212
💚 Hi I’m Sarah and I’m 35. I live in the UK. I became ill in 2013 and was diagnosed with Gastroparesis in 2015. I have a PEGJ which is used for medication and draining only, as unfortunately I failed on the enteral feed and I am fed by tpn via my broviac line. Unfortunately I’ve been told I’m not a candidate for a pace maker, due to the Gastroparesis effecting my bowel also. As well as GP I also have a number of other chronic illnesses which also makes it hard to deal with. It has and is an emotional battle and I have my ups and downs. In and out of hospital with long admissions. But it has made me stronger and I won’t give up and let this or should I say these illnesses win!
# Gastroparesis Warrior 💚💚💚
- Written by Kimberly Marenic Casey
- Hits: 229
Holly Marenic was born 6/12/96 and she died 5/8/17. Holly's story actually begins before 6/12/96. I had chicken pox
during my 15th week of pregnancy, giving Holly the chicken pox at 16 weeks gestation, during the time her brain stem was developing. The varicella virus attacked and damaged her brain stem and the Vagus nerve was damaged. This is important to know because we now know that trauma/damage to the Vagus nerve is one of the onsets of gastroparesis.
Holly suffered with GI issues her whole life, most of which were unexplainable. Sharp shooting pains, unable to tolerate her feedings, vomiting and nausea, constipation or diarrhea. She had emergency surgery Christmas Eve of 2003 for an interception. She was on TPN three different times due to her in tolerance of her feedings. The damage to Holly's Vagus nerve also caused issues with her ability to swallow. So the almost constant vomiting caused chronic aspiration pneumonias.
- Written by Beth Davis
- Hits: 237
I’m Beth, I live in Shelby NC 28150. I’m 58; been on disability due to fibromyalgia since 2007(I’m an RN). Since 2008, have had episodes lasting months/years of nausea, vomiting, pain, bloating; during one of those I lost 80lbs.
I was diagnosed with gastroparesis in January of 2018. Due to flares this year, my quality of life has been severely affected. At times, sips of Sprite and IV fluids is my total intake. It’s exhausting and depressing. I get scared, because doctors and specialists admit, they don’t know much and cannot do much to help.
This is my GP Flare Face; I was in the hospital. Much better right now. I’m thankful for every hour of non-flare!
Also below, my baby Matilda, 2 years old. She keeps me going. I have little family support, but I have her!
I also have fibromyalgia, diabetes, high blood pressure, migraines, IBS, and angina. I’m a disabled nurse.
We all need and deserve better!
Page 1 of 5