faretra kristina1 9ef76First off, seems like most ERs we have been to do not even know what GP is.faretra kristina2 9bab6

2nd off, seems like if you are vomiting worse than usual, lethargic, or can’t even hold down water and you know it’s not your GP acting up, the ER will automatically brush every symptom as ITS JUST GP and not do anything. 

Seems like every ER is afraid to touch a child that has GP. Seems like many do not even know what safe meds are and aren’t for GP. (My son was given meds for a virus the other day meanwhile his GI said it was one of the worst meds they can give GP person)

I was told by a doctor that i must have been doing drugs when i was pregnant because that is the only reason my son must have GP and rely on a feeding tube to survive. 

 

 

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marenic holly6 0f2a9Holly Marenic was born 6/12/96 and she died 5/8/17. Holly's story actually begins before 6/12/96.   I had chicken pox 

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during my 15th week of pregnancy, giving Holly the chicken pox at 16 weeks gestation, during the time her brain stem was developing. The varicella virus attacked and damaged her brain stem and the Vagus nerve was damaged. This is important to know because we now know that trauma/damage to the Vagus nerve is one of the onsets of gastroparesis.

Holly suffered with GI issues her whole life, most of which were unexplainable. Sharp shooting pains, unable to tolerate her feedings, vomiting and nausea, constipation or diarrhea. She had emergency surgery Christmas Eve of 2003 for an interception. She was on TPN three different times due to her in tolerance of her feedings. The damage to Holly's Vagus nerve also caused issues with her ability to swallow. So the almost constant vomiting caused chronic aspiration pneumonias.

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I’m Beth, I live in Shelby NC 28150. I’m 58; been on disability due to fibromyalgia since 2007(I’m an RN). Since 2008, have had episodes lasting months/years of nausea, vomiting, pain, bloating; during one of those I lost 80lbs. 

I was diagnosed with gastroparesis in January of 2018. Due to flares this year, my quality of life has been severely affected. At times, sips of Sprite and IV fluids is my total intake. It’s exhausting and depressing. I get scared, because doctors and specialists admit, they don’t know much and cannot do much to help. 

This is my GP Flare Face; I was in the hospital. Much better right now. I’m thankful for every hour of non-flare!

Also below, my baby Matilda, 2 years old. She keeps me going. I have little family support, but I have her!

I also have fibromyalgia, diabetes, high blood pressure, migraines, IBS, and angina. I’m a disabled nurse.

We all need and deserve better!

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walls eshanya 7c1dfI was diagnosed 1 year and 5 months ago but believe my GP started developing 3 months prior to diagnosis. 

I have suffered from Cyclic Vomiting Syndrome for over 25 years. 

I thought for sure with the GP diagnosis I would finally be heard and get some treatment and attention to my gut health. 

Although, CVS is rare and I never received adequate treatment I had well phases. With GP I found I was more isolated and basically left for dead. 

I have many diagnosis but I truly believe once my GI system went out everything was set off and flared. 

I am here to be heard and fight with the best. 

gilbert sarah a6089Hello! Thank you for adding me! I'm Sarah, from Colorado. I'm 37, and was diagnosed in May 2 years ago after being sick for many years. At first it was just written off by many doctors, and after finding out what was wrong I've realized I probably have had delayed emptying problems my entire life. I'm lucky, I respond well to reglan, and have recently been gaining some of the weight I had lost back. I'm so glad to be here! This is a pic of me tonight, pretty bad pain but still smiling!

bowker sarah 532aa💚 Hi I’m Sarah and I’m 35. I live in the UK. I became ill in 2013 and was diagnosed with Gastroparesis in 2015. I have a PEGJ which is used for medication and draining only, as unfortunately I failed on the enteral feed and I am fed by tpn via my broviac line. Unfortunately I’ve been told I’m not a candidate for a pace maker, due to the Gastroparesis effecting my bowel also. As well as GP I also have a number of other chronic illnesses which also makes it hard to deal with. It has and is an emotional battle and I have my ups and downs. In and out of hospital with long admissions. But it has made me stronger and I won’t give up and let this or should I say these illnesses win! 
# Gastroparesis Warrior 💚💚💚

bankson tami 8889aGood morning everyone! I'd like to just introduce myself a bit to ya'll.


I'm 47 years young, married with 5 adult 'children' :) My husband and I have adopted our oldest grandson, who is 6 and autistic, making him child #6. THEY are my reason for fighting every day!


In 2007, I had an emergency cholecystectomy (gallbladder removal), but NEVER got better :(


I've tried everything under the sun to treat my symptoms and have had little luck with any of them. I was a gainer for most of this time until about 2 years ago, then all of a sudden I wasn't. Nothing in my habits changed. I just started dropping weight. FAST. The last time I weighed myself (bear in mind, this is about 6 months ago, because it depresses me that much!), I had lost 84 pounds.